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Showing posts from September, 2016

Frustration Part 3: Immunology

During all of the summer Neurology nonsense, I also set up an appointment with a Rheumatologist to have my cantaloupe-sized-swollen-knees looked into. Rheumatologists apparently aren't as busy as Neurologists and I was able to be seen within a couple of weeks. He ordered a long list of blood tests (13 vials of blood) most of which came back with normal results because that's just how things go for me. The Rheumatologist decided to look into a couple of things because even though my results were within normal range, they were on the lower (or upper, depending on which test we are talking about) side of things. So I headed on over to an Immunologist, who, in case you were wondering, was also able to see me within a relatively short time period. (Which leaves me wondering--Why are Neurologists busier than every other specialist?) The Immunologist gave me a shot as part of his investigation into how my immune system is functioning and sent me off for  more  blood tests but th

Frustration Part 2: Neurology

Sometimes I have the worst luck. Maybe luck isn't the right word. But whatever is the right word things have a way of working out in unexpected and somewhat unpleasant ways for me. Not always. But when it happens it seems to come in a downpour. In June, I chose a new Neurologist for myself. I researched all of my options as best as I could and chose a woman doctor who I had a very good feeling about, feeling that she was going to be the right doctor for me. I got my referral and set up an appointment 4 months out, because getting in to a Neurologist's office always takes months. I guess they are very busy people. I asked them to put me on the cancellation list, hoping that I'd be able to get in to her office sooner, rather than later, knowing full well that I'd be on the bottom of the list so it might take a while. And so then I waited. As summer progressed onward, I slowly moved up on the cancellation list. Neurology called three times offering me a sooner appoin

Frustration Part 1: My Body

I've been feeling really frustrated with my body lately. I don't want to just sit around, barely moving, accomplishing nothing, feeling bad physically and emotionally. So I get up. I clean. I do laundry. I bend and straighten and walk. I push myself to get done all the things I need to get done and want to get done and could have gotten done more quickly and efficiently before . But I can't do it quickly anymore. I can't do it efficiently. Half of it I can't even do. I get through some and then I have to stop to rest. Mr. Amazing shakes his head. "Why are you doing this to yourself? You are doing too much," he says. I know he is right but I don't want him to be right. I get back up. I push some more. I crash. I lay in bed the whole next day. And the next day after that. Five days later, I still haven't recovered. I'm miserable. I'm frustrated. I'm thinking, I can't even clean the house without ruining the rest of the week. L